School organizes carnival for 2-year-old boy with rare disease

Greyson Franklin, 2, dressed as one of his favorite superheroes, battles a rare disease called Langerhans cell histiocytosis. (Photo courtesy of Katie Franklin)

Northwest Christian School is organizing a fundraising carnival for one of its 2-year-old preschool students.

Earlier this year, Greyson Franklin was diagnosed with Langerhans cell histiocytosis, a rare and incurable autoimmune disease.

It can cause severe skin lesions and cancer-like tumors that can require chemotherapy or radiation.

Greyson's mother said he's currently undergoing chemo and taking steroids. The closest pediatric cancer hospital, however, is in Los Angeles, where they drive to once a week.

In addition to the financial burden of travel and co-pays, she said her husband recently left the oil industry and started a new career in law enforcement. While it may be a steadier job, she said he took a pay cut when he made the transition.

That's where Northwest Christian fits in. They are planning a carnival on May 13 to help raise money for the family. It's taking place from 11 a.m. to 2 p.m. that day at 3311 Manor St.

There will be live music, a bounce house, carnival games, face painting, raffle and chili cook-off.

All of the proceeds will go towards Greyson's chemotherapy co-pays and travel to L.A., which his mom estimates will cost them $12,000 this year.

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